2014 Miracle Weekend Celebrates “Outta Sight” Success

Stroll for Strong Kids Gets Groovy 

IMG_0341More than 7,000 Golisano Children’s Hospital supporters filled Genesee Valley Park May 31 for the 18th annual Stroll for Strong Kids Walk and 5K Run. The Peace, Love and Healing-themed event raised a groovy record-breaking total of $445,000 for the region’s only children’s hospital – and you can still donate online until June 30!

It was a beautiful day filled with wonderful people, including hundreds of teams, as well as individuals, decked out in colorful t-shirts, many honoring a special person or division of the children’s hospital.

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CMNH Telethon Celebrates Miracles 

IMG_0995Children and families touched by Golisano Children’s Hospital came together on June 1 to share their remarkable stories at the annual Children’s Miracle Network Hospitals (CMNH) Telethon, presented by Tops Friendly Markets and hosted by News10NBC.

A part of our annual Miracle Weekend, the event recognized the heart-wrenching stories of our 2014 Miracle Kids, as well as those from past years and other supportive and grateful patient families. Co-hosted by News10NBC anchors Nikki Rudd, Lia Lando, Brett Davidsen and Scott Kilbury, the Telethon also allowed time to acknowledge the hard work our CMNH sponsors have put in over the past year, revealing their different fundraising totals throughout the day.

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Telethon to provide sneak peek inside new hospital

The 2014 CMNH Telethon will be from 10 a.m. to 1 p.m. and 6:30 to 11 p.m., Sunday (June 1) on News10NBC, a day after the Stroll for Strong Kids walk and 5K. The Miracle Weekend event will recognize the heart-wrenching stories of our 2014 Miracle Kids, as well as the great work of our wonderful community partners and supporters.

playdeck panoramaAs part of the broadcast, News10NBC stopped by the construction site of the new hospital to get some never-before-seen footage. They got to stand in the future atrium, see that the NICU floor is almost all drywalled and starting to get painted. They were the Playdeck’s first media visitors, and despite it being a bit overcast, they got a glimpse of the Finger Lakes region from the 8th floor. To see it all, you have to watch the Telethon, but to whet your appetite, check out this slideshow of photos from the tour.

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“We are Roman Strong” gives back during Miracle Weekend

RomanFans of the Golisano Children’s Hospital Facebook page, Darcy Eichas-Statt and Kevin Statt began seeing promotions for the 18th annual Stroll for Strong Kids walk and 5K and knew they had to get involved and give back to the hospital that helped their son.

The “We are Roman Strong” team will be joining thousands of other children’s hospital advocates in the Peace, Love, and Healing-themed Stroll for Strong Kids event, May 31, at Genesee Valley Park. The much-anticipated event kicks off Miracle Weekend, with the Children’s Miracle Network Hospitals Telethon following on News10NBC June 1.

Before Roman’s second birthday, Darcy and Kevin noticed their son was developing spots on his legs. Roman’s daycare teacher had also mentioned he was bruising more than the other kids. Darcy took Roman to their pediatrician at Genesis Pediatrics in Rochester who diagnosed him with petechiae – red or purple spots on the skin caused by broken capillary blood vessels – and believed he had a blood disorder. They advised the Statt family to take their son to UR Medicine’s Golisano Children’s Hospital immediately for further blood testing. After treating what initially looked like a blood disorder, doctors performed a bone marrow biopsy and found Roman had leukemia.

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May is for Miracles

miraclekidsbanner

Every May, we, at UR Medicine’s Golisano Children’s Hospital, can barely wait for the Celebration of Miracles Luncheon to announce the 2014 Miracle Makers and Miracle Kids. Today, we finally got to reveal who they are at the Rochester Riverside Convention Center!

Our Miracle Makers are an incredible group of supporters who help make possible the care we provide to our region’s children and their families. We would be lost without the dedication and sacrifice of these organizations, companies, individuals and parents:

Tricia White

Cycle for Hope

Ronald McDonald House Charities

The Drive for Miracles Radiothon

Our five brave 2014 Miracle Kids were also announced at the luncheon. They are children who have beat the odds and represent the 70,000 others who come to Golisano Children’s Hospital every year for care:

Brynn Taylor

Andrew Lagares

Katie Foster

Blake Gauss

Chase Ayles

Please help us celebrate our Miracle Kids by participating in the Stroll for Strong Kids Walk and 5K Run May 31 and watch the Children’s Miracle Network Hospitals Telethon on News10NBC June 1.

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There’s Still Time to Register for the 2014 Stroll for Strong Kids

Sandy-Hippy-TiedyeThis year’s peace, love and healing-themed Stroll for Strong Kids Walk and 5K will take place Saturday, May 31, at Genesee Valley Park and is guaranteed to be a groovy time!

The 5K race will begin at 8:30 a.m., followed by the walk at 10:30 a.m.

The event will continue until 1 p.m. with family-friendly activities, including bounce houses, carnival games, photo booths, dunk tanks, arts and crafts and much more!

There’s still plenty of time to register and ask your friends to join your team or support your fundraising efforts. Click here to learn how.

Our top individual online fundraisers right now are:

Our top team online fundraisers right now are:

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Meet Our 2014 Miracle Kids on Our New Instagram!

Are you on Instagram? We are! Follow our account, “@URMed_GCH,” for a sneak peek of our 2014 Miracle Kids, five courageous kids who have overcome great medical obstacles with the support of their incredible families and medical teams.

Keep up-to-date with the latest at Golisano Children’s Hospital through our pictures! In addition to the Miracle Kids, you will see photos of construction progress on our future building, Playdeck activities, faculty and staff, patients, events and more.

We appreciate your support!

 

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Baby Girl Overcomes Multiple Medical Obstacles

BrookeAn ovarian cancer survivor, Krystle Ellis didn’t think she was ever going to be able to have a baby. For her and her husband, Ricardo, the world changed, when they got the news in February 2012 that Krystle was pregnant. While the Brighton couple firmly believed the pregnancy was a miracle, they had no idea about the journey they had yet to face.

From her first ultrasound at UR Medicine’s Strong Memorial Hospital, Krystle knew something was wrong. The scan showed that baby Brooke’s neck was hyper-extended and her brain and musculoskeletal system weren’t developing correctly. Krystle also had a uterine fibroid tumor that was sitting on top of Brooke’s head, taking up most of her space in the womb.

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Future children’s hospital reaches new construction milestones

As we move into a season of growth and renewal, the construction of UR Medicine’s future Golisano Children’s Hospital, scheduled to open its doors in 2015, continues to progress in many ways. While the finishing touches are being put on the building’s exterior, the installation of the interior details is really just beginning – and we can’t wait to see how they look!

In addition to the exterior framing being close to complete, the interior framing is also almost finished. One of the most exciting steps in the building’s recent progress is the start of the bridge connection, which will allow families, faculty, and staff to commute from the children’s hospital into Strong Memorial Hospital, and vice versa. The bridge is expected to be completed in late summer or early fall.

The wall of what will be the main lobby is on the right. The secret play area will be between the two frames.

The wall of what will be the main lobby is on the right. The secret play pod will be between the two frames.

The new hospital will  provide our region’s families with the best environment for healing, with places for gathering, respite, resting, and playing. Some of the funnest features will be the different play areas, including a secret play pod, named by generous children’s hospital supporters Wayne and Beverly LeChase,  in one of the walls of the main lobby. Other play spaces include a special area for teens, multiple interactive games, a play deck and more.

To learn more about how you can be a part of this exciting project, please contact the Advancement Office at (585) 273-5948.

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Crush Cancer Concert honors patient with brain cancer

Hannah MetzlerFriends and family of Hannah Metzler, a Fairport High School (FHS) junior and UR Medicine’s Golisano Children’s Hospital patient who passed away last month after a battle with brain cancer, will gather in memory of Hannah at the second Crush Cancer Concert at 2 p.m. April 19, at the FHS auditorium. Hannah and her brother Luke, a member of the University of Rochester’s YellowJackets, organized the first benefit concert last year and, before she passed, Hannah asked that her family make sure the event she was planning come to fruition for its second year.

Crush Cancer Concert Poster

Last year’s event raised more than $18,000 to benefit cancer-related causes. In addition to supporting Rochester’s Teens Living with Cancer (TLC) and a memorial fund being set up in Hannah’s name, this year’s concert will also benefit Golisano Children’s Hospital’s Bright Eyes Fund, a fund aimed at improving the lives of children with brain tumors and their families throughout their treatment and beyond.

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Wegman Family Foundation Gives Hospital $7M

JoelYesterday, University of Rochester President Joel Seligman announced two extraordinary gifts from The Wegman Family Charitable Foundation (WFCF): a $7 million gift to support UR Medicine’s Golisano Children’s Hospital and a $10 million lead gift to the University’s Institute for Data Science.

Together with previous gifts to several programs across the University campuses, the announcement brings the WFCF’s total contributions to the University’s comprehensive campaign to $20 million.

“It is our honor to support the University’s campaign,” said Danny Wegman, the Foundation’s president and chairman of the board. “What could be more important or gratifying than ensuring the health of our children?”

The Institute for Data Science and the Golisano Children’s Hospital campaign are flagships of the $1.2 billion goal for The Meliora Challenge: The Campaign for the University of Rochester.Brad and Danny

The new hospital, which is the largest capital project in the University’s history, is slated to open in the summer of 2015. To date, the community and donors, such as The Wegman Family Charitable Foundation and B. Thomas Golisano, have generously supported the hospital construction, giving $45 million of the $60 million that must be raised for the building. Wegman, honorary chair of the Medical Center campaign, hopes to inspire others to help close the $15 million fundraising gap still needed for the new building.
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