Crush Cancer Concert honors patient with brain cancer

Hannah MetzlerFriends and family of Hannah Metzler, a Fairport High School (FHS) junior and UR Medicine’s Golisano Children’s Hospital patient who passed away last month after a battle with brain cancer, will gather in memory of Hannah at the second Crush Cancer Concert at 2 p.m. April 19, at the FHS auditorium. Hannah and her brother Luke, a member of the University of Rochester’s YellowJackets, organized the first benefit concert last year and, before she passed, Hannah asked that her family make sure the event she was planning come to fruition for its second year.

Crush Cancer Concert Poster

Last year’s event raised more than $18,000 to benefit cancer-related causes. In addition to supporting Rochester’s Teens Living with Cancer (TLC) and a memorial fund being set up in Hannah’s name, this year’s concert will also benefit Golisano Children’s Hospital’s Bright Eyes Fund, a fund aimed at improving the lives of children with brain tumors and their families throughout their treatment and beyond.

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Wegman Family Foundation Gives Hospital $7M

JoelYesterday, University of Rochester President Joel Seligman announced two extraordinary gifts from The Wegman Family Charitable Foundation (WFCF): a $7 million gift to support UR Medicine’s Golisano Children’s Hospital and a $10 million lead gift to the University’s Institute for Data Science.

Together with previous gifts to several programs across the University campuses, the announcement brings the WFCF’s total contributions to the University’s comprehensive campaign to $20 million.

“It is our honor to support the University’s campaign,” said Danny Wegman, the Foundation’s president and chairman of the board. “What could be more important or gratifying than ensuring the health of our children?”

The Institute for Data Science and the Golisano Children’s Hospital campaign are flagships of the $1.2 billion goal for The Meliora Challenge: The Campaign for the University of Rochester.Brad and Danny

The new hospital, which is the largest capital project in the University’s history, is slated to open in the summer of 2015. To date, the community and donors, such as The Wegman Family Charitable Foundation and B. Thomas Golisano, have generously supported the hospital construction, giving $45 million of the $60 million that must be raised for the building. Wegman, honorary chair of the Medical Center campaign, hopes to inspire others to help close the $15 million fundraising gap still needed for the new building.
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Autism rate rises to 1 in 68 children

Zachary-Slade

Golisano Children’s Hospital patient Zachary Slade was diagnosed with autism spectrum disorder at just 2 1/2 years old.

According to a new estimate issued March 27 by the Centers for Disease Control (CDC) the number of kids with autism has risen sharply. The data identifies 1 in 68 children (1 in 42 boys and 1 in 189 girls) as having Autism Spectrum Disorder (ASD). The estimate, based on data of 8-year-old children in 11 sites across the U.S. is a 30 percent increase from the 1 in 88 reported two years ago.

In a recent Health Matters blog, Susan Hyman, M.D., autism expert and chief of Neurodevelopmental and Behavioral Pediatrics at UR Medicine’s Golisano Children’s Hospital, explains four major needs underscored by these new statistics and the beneficial resources we have in the Rochester community that provide early intervention and family support.

Autism is one of the seven priority programs of Golisano Children’s Hospital’s $100 million campaign and the prevalence of these new findings demonstrates the need for more research, treatment and support. Please consider making a gift toward this program. Your support could help enhance care, advance research, and educate future professionals who will work with children diagnosed with autism today. Learn more.

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NICU Patient’s Fairy Tale Journey

carriage rideDid you know that Golisano Children’s Hospital is not just a place of healing, but also a place of magic and enchantment? The Colon family and their daughter Maiya experienced this magic first hand during Maiya’s stay in our Neonatal Intensive Care Unit (NICU). Maiya’s mother, Maria Colon, has compiled her memories of Maiya’s NICU experience into a book titled, Becoming Maiya’s Mommy, that dives into Maiya’s story with the fairy tale of “Princess Maiya the Mighty,” as its introduction. Through Maria’s writing, Golisano Children’s Hospital is transformed into a land of nursemaids, mighty knights, and powerful wizards all working around the clock to save Princess Maiya the Mighty.

Maiya was born seven weeks early in August 2012. Though shemaiya heather had an easy birth, Maiya was admitted to the NICU at Golisano Children’s Hospital because of her premature arrival. For the first few days Maiya was progressing along smoothly, but she, unfortunately, took a turn for the worse and complications stemming from her premature birth began to develop. As Maiya’s condition deteriorated, our NICU team sprang into action to stabilize her condition and bring her back to health.

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Child and adolescent eating disorder expert honored for his efforts

Kreipe Richard MDRichard E. Kreipe, M.D., founding director of UR Medicine’s Golisano Children’s Hospital’s Child and Adolescent Eating Disorders Program, will be recognized with the Academy of Eating Disorders (AED) Leadership Award for Clinical, Administrative, or Educational Service during the International Conference on Eating Disorders, March 29, in New York City. The AED is a global professional association committed to, among other goals, fostering innovation and best practice by recognizing excellence in the field of eating disorders.

An adolescent medicine specialist and the Dr. Elizabeth R. McAnarney Professor in Pediatrics Funded by Roger & Carolyn Friedlander, Kreipe is being honored for his contributions to the clinical care of individuals with eating disorders and his sustained leadership in the field, which has lasted more than 30 years. Kreipe has dedicated his career to advancing research, education, clinical practice, and community outreach to better care for young people diagnosed with eating disorders.

In addition to being the director of Golisano Children’s Hospital’s eating disorders program, Kreipe is the medical director of the Western New York Comprehensive Care Center for Eating Disorders. He also serves as the principal investigator at the University of Rochester for the New York State Assets Coming Together for Youth Program, a long-tem, statewide, community-based public health initiative designed to promote healthy youth development. Kreipe has also co-edited the Textbook of Adolescent Health Care, published by the American Academy of Pediatrics in June 2011 and sat on the New York State Governor’s Children’s Cabinet Advisory Board.

AlyssaMorales

2013 Miracle Kid Alyssa Morales, an eating disorders patient of Dr. Kreipe’s, cooks in the kitchen with her sisters.

Kreipe takes particular pride in the work he has done to de-stigmatize adolescent eating disorders as a mental illness  and to, instead, have them understood as a developmental disorder. His inter-disciplinary approach has shifted the clinical focus on eating disorders from blame to one centered on support and solutions. It incorporates both providers and families into support teams that are dedicated to ensuring the recovery and long-term physical and emotional health of patients.

One of the seven priority programs of Golisano Children’s Hospital’s $100 million campaign, the Child and Adolescent Eating Disorders Program has become a beacon of hope for young people and their families, with more than 80 percent of its patients attaining a healthy eating pattern and body weight to go on to live healthy, productive lives.

“I am humbled to receive this award,” said Kreipe. “I have learned so much from the patients and their families and I am grateful to be allowed into their lives.”

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Spread the Word to End the Word

This gallery contains 8 photos.

This week, Cafe 601 at the University of Rochester Medical Center broke into a party, celebrating with a DJ and a blues band the many pledges from its diners to end the use of the “R-word.” All across the University of … Continue reading

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Patient Inspires Others to “Never Give Up”

MorganSmithlingPicAs an 11 year old, the most Morgan Smithling was concerned about was practicing for her swim meets, what her sisters were up to, and showing her family’s Brown Swiss cows in the next county fair. In January 2013, however, Morgan, a then sixth grader at Marcus Whitman Middle School in the town of Rushville, and her family learned she would have to face a much bigger concern – cancer.

In November 2012, Morgan, now 12, occasionally complained that she was suffering from back pain. Her parents Doreen and Kevin thought it had to do with her sciatic nerve, but when the pain intensified in January they knew something wasn’t right. Doreen took Morgan to the local Interlakes Orthopedic facility, where doctors ordered an MRI and discovered a tumor in her pelvis. Morgan was then referred to Strong Memorial Hospital. Doctors performed a biopsy and, shortly after, Morgan was diagnosed with Ewing’s Sarcoma, a rare bone cancer that primarily affects children and adolescents.

Prior to starting chemotherapy treatments at Golisano Children’s Hospital on Feb. 15, 2013, Morgan could hardly walk and had to rely on getting around in a wheelchair. She had been an active member of several swim teams, including her school’s modified girls’ swim team and area swim club, as well as the Clifton Springs YMCA, but the pain and immobility became too much, holding Morgan back from one of her greatest passions.

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2014 Drive for Miracles Radiothon Sets Record High

IMG_2697Phones rang off the hook at the 2014 Drive for Miracles Radiothon, presented by Tops Friendly Markets. Patient families, medical professionals and volunteers from the community, and local businesses, showed their dedication to UR Medicine’s Golisano Children’s Hospital by helping raise more than $328,000, a record-breaking success — $100,000 more than last year!

100.5 The Drive, WHAM 1180, and 13WHAM-TV teamed up for the two-day event February 13 and 14 to talk with grateful families and share stories of hope and healing with the community. The Drive’s J.P., Julie, Bill Moran and Mayor Pete Kennedy joined WHAM’s Chet Walker and Bob Lonsberry in talking with thankful parents, former Miracle Kid patients, and pediatric nurses and doctors who have each felt the impact of donations first hand.

IMG_2669Jennifer Johnson and Adam Chodak of 13WHAM-TV teamed up to do several live broadcasts on Valentine’s Day in memory of Jennifer’s daughter and 2012 Miracle Kid “Amazing Grace” EspositoRead more in Jennifer’s blog post about the inspirational $350,000 commitment she and the 13WHAM team have made, which will name a special healing garden in remembrance of Grace. All of the money donated during the Radiothon on Friday will go toward Grace’s fund for the children’s hospital.

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Take a Look Inside Our Future Hospital Building

In preparation for Thursday and Friday’s Drive for Miracles Radiothon broadcast, members of the Rochester Clear Channel Radio team had the opportunity to take a look inside some of the areas of the future Golisano Children’s Hospital building. After learning … Continue reading

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The Drive for Miracles Radiothon Hits Air Waves Feb. 13 and 14

Radiothon_2014-Cover_ArtJoin us Feb. 13 and 14 for the annual Drive for Miracles Radiothon on 100.5 The Drive!

100.5 The Drive, 13WHAM-TV, and WHAM 1180 are teaming up for the two-day event, next Thursday and Friday, to talk with patients, families, physicians, nurses,  and more and share stories of hope and healing with the community.

Also, join Jennifer Johnson and 13WHAM-TV Friday, Feb. 14, for their special Radiothon coverage from 5 to 9 a.m., 12 to 12:30 p.m., and again from 5 to 6:30 p.m. Dedicated in memory of Jennifer and Vinnie Esposito’s daughter and 2012 Miracle Kid “Amazing Grace,” Friday’s Radiothon proceeds will not only benefit the future Golisano Children’s Hospital building, but will support a special healing garden as well – areas the Esposito family and 13WHAM crew have committed to supporting in honor of Grace. Read more about the Esposito’s courageous story and their plans to honor Grace’s memory in the new hospital building.

The event would not be a continuous success without the support from the Rochester community. Volunteers from a variety of businesses and organizations in the area, including Tops Friendly Markets, Walmart, Abbott’s Frozen Custard, RE/MAX Plus, and more, spend hours manning the phone booths and taking calls from generous donors. Last year’s Radiothon raised $217,000, a record-breaking total!

To make a donation during this year’s Radiothon, call (585) 241-KIDS or donate online now! Thank you for your support!

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